Supporting people with aniridia and their families in the UK
Aniridia Network UK
NEWS FLASH! You can now book your place at the 2008 Annual Meeting.
What is Aniridia?
Aniridia is a rare genetic eye condition characterised by the partial or complete absence of the iris and may include a range of secondary conditions, such as, low vision, nystagmus, glaucoma, cataracts, and cornea pannus/aniridic keratopathy. Aniridia can be part of a syndrome know as WAGR.
What does the Aniridia Network UK do?
The Aniridia Network UK is a voluntary organisation providing support and information for people with aniridia and their families. The group has around 60 members and its activities are co-ordinated by a committee of five members. The group is open to anyone with aniridia and their families or to anyone with a professional interest in aniridia such as doctors, teachers etc.
We currently provide:
- Bi-annual Newsletter
- Email discussion group
- Support for people with aniridia and their families.
- Information on aniridia and its associated conditions.
- An annual meeting giving members a chance to meet and share experiences.
We welcome new ideas and resources, so if you have any thoughts or some expertise to give our contact us through our details below.
We are currently redeveloping this website, we hope to have a lot more information here soon. If you would like more information on aniridia or you would like to talk to other people with aniridia or parents of aniridic children in the UK you can join our
online/email discussion group. Our Information Officer, Hannah, also runs an online discussion group for people with aniridia from all around the world, see the
Aniridia Network International website for more details. You can also get in touch with the committee directly via the contact details below, we would love to hear from you!
Contact Details
Aniridia Network UK
22 Cornish House
Adelaide Lane
Sheffield
S3 8BJ
UK
Katherine Atkinson- Chairperson
katie@aniridia.org.uk
Tel: (+44) 07870 687614
Hannah James - Information Officer
Hannah@aniridia.org
Tel:(+44) 07779 859 624
We Are members of...
The Genetic Interest Group (GIG)
Specific Eye Conditions (SPECS)
Aniridia Network International On this website you can join the international e-mail discussion list, read members' stories and get information on aniridia and related issues.